Information Collection and Use

We require that you provide us with certain specific personal information when making donations or contacting us. Providing the required information enables us to contact you with tailored information we provide back to you. We do not disclose personally identifiable information to third parties under any circumstances. Any contact, whether through email contact, phone calls, letters or any other means are recorded in a secure database. This database is used to collect and provide aggregated, non-personal information to funding organizations for grant purposes and to our Board of Directors. The provided information does not identify users, their contact information or personal medical informaton and is collected as statistical information only. We strictly adhere to the National Standards to Protect the Privacy of Personal Health Information.

Protecting Your Personal Information

We protect your personal information by limiting access to employees who have a reasonable need to view it.

We have physical, technical, procedural and contractual safeguards in place to protect your personal information.

Know who you are giving your information to. You can protect personal information by providing it to entrusted sites. We provide you with additional ways of contacting us, either through our phone number or address listed on our contact form. We also provide you with several links to our other sites where you can learn more about us.

Email Communication and Website Usage

Email communication will be initiated by you when you conact us through our email address. All email communications are directed to the mailbox of our Director. Your email address will only be used by those staff members who can best assist you with the request you have made. We do not sell email addresses, nor will we contact you for any other reasons unless you have made a specific request.

Every time you visit a Ferre Institute web site, our servers automatically recognize your ISP domain name, but not your email address. This means our servers can identify "where" you're from, but not "who" you are. We may compile aggregate statistics about Web site visitors, traffic patterns and related site information, but these statistics include no Personally Identifiable information. We also do not use cookies on our site. Once you have used a link on our site to go to another site you should view their privacy policy in regards to their use of cookies; we cannot vouch for their use of cookies and in particular the placement of any third party tracking cookies by sponsors, advertisers or other parties.

Advertising Policy

Our mission is to provide you with accurate and current information. We do not have advertisements, sponsorships or links to any products on our site. We do not endorse products, services or companies on our site other than our own service. We provide medical information on our site and offer a free service providing tailored information to consumers and health care providers who initiate contact through our online contact form. We also make available our phone number for the purpose of making appointments within our office.

Content and Editorial Policy

We provide medical information, not medical advice. We ensure the content on our site is accurate. Content is created by our medical staff and also provided through the medical and professional community. All content is sited and links to content published elsewhere are provided for citations of non-staff members. A link to another site does not imply approval or endorsement of material on that site.


All phone calls and consultations will remain confidential as pursuant to the United States Health Insurance Portability and Accountability Act of 1996 (HIPAA). If you were referred by your physician for a genetics consultation, then only that physician will receive information regarding your visit. No other individuals will be notified of your appointment without your written request. If you are calling or use any other form of correspondence to learn more about our Heart and Genes Program, your request will remain confidential.

All rights reserved. Use of this site constitutes acceptance of Ferre Institute's privacy policy. The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing physician.

Last Modified: February 1, 2010